Our Readers Say...
From time to time our readers leave comments through the Newsletter Registration form that are non personal and we share them here.
If you would like to leave a comment please Register for Our Newsletter:
ANGIE said:
Tuesday, 27 Jul 2010
I SUFFER WITH FIBROMYALGIA, IN SEVERE PAIN AT THE MO.I WAS GIVEN ALOT OF INFORMATION WHEN I WAS DIOGNOSED AND TOLD TO SHOW MY FAMILY AND FRIENDS, HAD THIS FOR TWELVE MONTHS NOW AND NOBODY HAS EVEN LOOKED AT IT.DONT HAVE SUPPORT JUST EXPECTED TO SUPPORT EVERYBODY ELSE.
Deby said:
Friday, 23 Jul 2010
Thankful to have the support of a website. Looking forward to receiving the newsletter.My best to all.
Sharon said:
Thursday, 15 Jul 2010
This is a very good informative site.
Karen said:
Saturday, 10 Jul 2010
I am greatly relieved to find somewhwere that is not over emotional (some American sites for example) I trust in this website and what it says and I feel reassured it isnt "all in my mind"
Karen said:
Friday, 9 Jul 2010
I have just been diagnosed with fibromyalgia and have found your website really helpful in coming to terms with this and how to try and mangage this illness.
Charlotte said:
Tuesday, 6 Jul 2010
I have suffered with Fibromyalgia syndrome for several years now. I'm always interested in learning new information that has been learned about this. I have looked all over to find a chart or something that is informative on what to eat & what to avoid that will help..
Jacqueline said:
Sunday, 4 Jul 2010
I have Fibromyalgia,I am surfing you site to see if there is any information on fibromyalgia and ill health retirement !!!!! many thanks
Maya said:
Saturday, 3 Jul 2010
Very informative site, being diagnosed with fibro is hard but knowing there is comprehensive information is a godsend.
Jeanette said:
Wednesday, 30 Jun 2010
Thank you for such a good website full of good information jen
Susan said:
Saturday, 19 Jun 2010
I have recently heard that Ritalin had been used for Fybromyalgia/M.E. could you please let me know of any information regarding this.
Many thanks.
SUSAN said:
Sunday, 13 Jun 2010
Fantastic website so glad I found you.
BEVERLEY said:
Tuesday, 25 May 2010
My daughter has been diagnosed with Fibromyalgia. Life is tough. I have found this site very informative - thank you.
Kimberley said:
Saturday, 22 May 2010
I'm glad I have found this site, very informative. I have shown my family this site to help them understand.
Pat said:
Friday, 30 Apr 2010
Great site, don't feel quiet so mad now as I see I'm not on my own !!
Stacey said:
Monday, 26 Apr 2010
Oh my word, I am so glad to have found this site! I thought I was going crazy, doctors have not been able to specify what is wrong withme for years and finally a wonderful doctor has told my I have fibromyalgia and all of a sudden I realise that Im not alone with these problems and symptoms and helplessness!!! This site is like reading the story of my life! Thank you for the helpful information!
Lorraine said:
Saturday, 24 Apr 2010
I realy struggle with fb and day to day living I fiund this site informative
Eleanor said:
Thursday, 22 Apr 2010
Thanks great information very informative website Diagnosed last year with fibromyalgia GP helpful tried epilepsy medication but caused liver problems. Using pain patches at moment. Suffer panic attacks not been out on my own for a few years. Hope a miricle cure can be found.
Natasha said:
Wednesday, 21 Apr 2010
Thanks for such an informative website I have been researching a lot on fibromyalgia and cfs since I was diagnosed with it last week. The site has been helpful but I was wondering if their was any information about fibromyalgia and tips for studying at university levels for medical health degrees.
any information greatly appreciated keep up the fantastic work. :)
Pauline said:
Friday, 16 Apr 2010
Yes it was good ,some of your articals as I knew these simptoms were happerning but wasnt quete sure if it was fibro symtoms thanks for the info ,it has helped me understand fribro a bit more
Julie said:
Wednesday, 7 Apr 2010
I found this site brilliant and easy to understand. The information supplied is extremely helpful.
Peter said:
Monday, 5 Apr 2010
The Best website I have seen so-far I was diagnosed with Fibromyalgia a few week ago and found some great info on this site..
Lynne said:
Thursday, 25 Mar 2010
I have suffered for years and have only recently been diagnosed with Fibromyalgia. I have shown your site to my husband and it has helped him to understand what I have to endure. It is the best site I have found. I have spent years thinking I was an hypocondriac and its been such a relief to see other readers comments who say the same thing. Im looking forward to receiving my first newsletter
Gillian said:
Saturday, 20 Mar 2010
Nice to find easy acsess to so much imfo in one place
Kathleen said:
Wednesday, 10 Mar 2010
Finally been diagnosed with fibromyalgia after years of suffering with lots of the symptoms.This site is the most informative one I have come across, infact I have so many of the symptoms, that I could have written the list myself! At last I feel like other people understand what im going through and that it is not all in my head.
Anne said:
Thursday, 4 Mar 2010
I have recently been diagnosed with FM but I am having trouble coming to terms with it, in fact my rheumatologist says I am in denial and I am suffering with chronic depression. I look forward to receiving your newsletters
Valerie said:
Thursday, 25 Feb 2010
After years of widespread pain, irritable bowel, problems with eyes, migraines and acid reflux I have just been diagnosed with fibromyalgia. There is a family history of central nervous disorders. I have found this site to be extremely supportive and informative. Thank you Val
Annrenee said:
Tuesday, 2 Feb 2010
I am looking for help with the dibilitating fatigue I want my energy back any sujestion,
Thank you Annrenee peer
Angela said:
Wednesday, 27 Jan 2010
I have found this site very interesting and helpful having been recently diagnosed with fibromyalgia and depression
Elaine said:
Tuesday, 19 Jan 2010
I am looking forward to receiving information on Fibromyalgia. I was diagnosed many years ago and feel my information is outdated. I also feel my daughter is suffering too and I'm in the process of fighting for her diagnosis.
Carol said:
Wednesday, 13 Jan 2010
What a great site.i have just been diagonsed with Fibromyalgia today and was in total shock,but having found this site I think I am going to be able to cope.once again thank you for such a great site.
Sandra said:
Sunday, 10 Jan 2010
Thank you for such clear information about this condition I now feel there are lots of options to try where I had no hope before
CLARE said:
Tuesday, 29 Dec 2009
Great site,lots of brilliant info
Michelle said:
Wednesday, 25 Nov 2009
Excellent werb layout, although not sure of the word 'contracted'. You dont catch Fibromyalgia, it develops within you..
David said:
Monday, 23 Nov 2009
Fab site so helpful and so informative.
Nicolette said:
Saturday, 14 Nov 2009
At last I found a doctor that would listen to me. now I don't feel like it's all in my head and I can move forward with the help of people like yourselves. thankyou for all the useful info you provide.
Sharon said:
Thursday, 12 Nov 2009
I am looking forward to reading my first copy..I have found your site very helpfull as I have just been diagnosed..it explains me to a tee..thank you
Carol said:
Wednesday, 11 Nov 2009
I've had FMS a number of years now with an ever growing collection of meds, had never came across this site before,easy navigation,easy to understand,lots of info,great!!!!
Jacquie said:
Tuesday, 10 Nov 2009
I've recently been diagnosed with Fibromyalgia. The specialist sent me to a website but I didn't find it that great for information on this subject. I've stumbled across your site today and now feel I'm not alone. Thank you so much for a clear and very informative website.
Lynn said:
Sunday, 1 Nov 2009
This is a very nice site, easy to navigate and lots of information!
Paulette said:
Wednesday, 14 Oct 2009
Very informative and well laid out site.
Viv said:
Tuesday, 29 Sep 2009
Fantastic site thanks but please could we have some info on how fibro afects periods I have read the article on pmt but info about period pain and regularity would be helpful
Rosalyn said:
Friday, 4 Sep 2009
My doctor has just told me I have fibromyalgia. sometimes the pain is really awful. please send me some inof on this. thank you
rosalyn
Julia said:
Saturday, 29 Aug 2009
Great not to feel alone !
Linda said:
Thursday, 27 Aug 2009
Was diagnosed with FM a year ago after a few years of pain and symptom flare ups . Unfortunatley the pain and symptoms are now constant so ive found this site invaluable in helping me deal with things at the moment, some brilliant, usefull info makes you realise your not on your own !.
Sarah said:
Tuesday, 18 Aug 2009
Excellent website...very informative and a great help
Sabine said:
Sunday, 16 Aug 2009
Very informative and one of the most complete site on FM. Would have liked a note or sign to make it clearer when your information is relevant for UK sufferer or more general, depending on the subjector even the paragraph.
Jackie said:
Friday, 14 Aug 2009
I have just been diagnosed with FM June this year, after many years of chronic pain, I had never heard of FM before or what it was,This site is great, very Informative,thanks.
Virginia said:
Wednesday, 12 Aug 2009
I look forward to your information. I often see clients with this disorder in my Christian Counseling practice.
Thank you.
Virginia Loew/Shelhammer, M.A., LPC
Board Certified Professional Counselor
Margaret said:
Friday, 31 Jul 2009
I have just been diagnosed with FMS & found this site very helpful in gaining understanding of the condition.
Thanks so much.
Julia said:
Monday, 27 Jul 2009
What a fantastic site. Full of very helpful information and especially good for the newly diagnosed. Thankyou!
Mary said:
Tuesday, 23 Jun 2009
Thank you for all of your great resources.
Lynne said:
Thursday, 18 Jun 2009
I look forward to receiving the newsletter. I will save other comments until later. Thank you.
Linda said:
Monday, 8 Jun 2009
This is the most informative and far reaching site I have viewed on the subject of Fybromyalgia. Many thanks you've done a great job.
Laura said:
Monday, 1 Jun 2009
Found this site very informative and assurance that I am not going mad!. look forward to receiving newsletters.
Sheila said:
Friday, 29 May 2009
GOOD EASY TO UNDERSTAND FACTS. THE SITE HAS COVERED MANY QUERIES RECOGNISED BY SUFFERS. THANK YOU
Leanne said:
Wednesday, 20 May 2009
Great informative uk site.
Has been very helpful since my diagnosis.
Thank you
Lockley said:
Monday, 18 May 2009
I have had fms for many years, I am just easing off ( abad set back)yet again.Am completley exousted. I look forward to your news letter.
Amanda said:
Sunday, 17 May 2009
Wow just have to say what a fantastic and informative site this is, the best I have found so far and I have been checking fibro out for a long time!
So thanks for all your hard work
Regards Amanda x
Fran said:
Monday, 11 May 2009
I have had fybromyalgia for several years and manage it well. However, I'm having a blip and have found this site very useful
Rachel said:
Monday, 27 Apr 2009
What a fantastic site I have had fybromyalgia for quite some time probably nearly as long as I have had rheumatoid arthritis or maybe even back to my teens when I was diagnosed with hypothyroidism and life isnt always easy but this type of site helps us all to cope and find ways to cope cheers
Patricia said:
Wednesday, 25 Mar 2009
Thankyou for a very informative site,it makes a very painful and confusing condition seem better to accept with so many facts and I no longer feel I am alone .
Deborah said:
Monday, 23 Mar 2009
This site is very informative and extremely helpful. I have only found one fault, which is claims made below articles saying cures for fibromyalgia syndrome. I suffer from chronic fibromyalgia syndrome and know these claims to be totally un-true.
Mary said:
Tuesday, 17 Mar 2009
What a great site! So pleased I fell on it. Just found out I've got fibromyalgie and need to learn as much as possible.
Anne said:
Monday, 16 Mar 2009
Your site is very helpful, it appears my FB started through bereavment sress. I look forward to visiting often.
Suzanne said:
Thursday, 12 Mar 2009
I've found this website very informative and helpful. Thank you
Eunice said:
Monday, 9 Mar 2009
I have just been diagnosed with this syndrome and wanted to know more about it ie pain relief etc. I have found you your site very helpful. Thank you.
Catherine said:
Tuesday, 3 Mar 2009
Best and most helpful site I have seen. Thanks for all the helpful info.
Susan said:
Tuesday, 24 Feb 2009
This is the first site I have visited that is as informative and helpful as I would like. Thank you.
Sheena said:
Monday, 9 Feb 2009
The site was easy to find my way around. I have been a suffer for a few years now but this site was full of useful information
William said:
Monday, 2 Feb 2009
I have recently been diagnosed with fibromyalgia. I am finding this site very helpful in researching the various aspects of this illness. Thank you.
Karen said:
Saturday, 31 Jan 2009
I have Fibromyalgia /CFS AND work as a Massage Therapist. Its NOT easy and I have to pace myself as much as possible.The good news is....this is what I specialize in and I know exactly what my clients are going through and how they feel.
Wendy said:
Sunday, 25 Jan 2009
Just been diagnosed with Fibromyalgia after many years of pain and found your web site very imformative and helpful. Thanks to all involved.
Maria said:
Thursday, 15 Jan 2009
Great site we need to know we are not alone
Penny said:
Tuesday, 13 Jan 2009
Have just been diagnosed with Fibromyalgia - this site has been fantastic in helping me understand what I need to deal with - thank you
Denise said:
Tuesday, 6 Jan 2009
This is a very helpfull site, many thanks for somuch info.
Onenita said:
Tuesday, 6 Jan 2009
This is the first time that I have visted this site, but I found the info very useful
CHRISTINE said:
Saturday, 27 Dec 2008
Thank you for acknowledging the ins and outs of fm, and putting it all in one place
Debbie said:
Friday, 21 Nov 2008
Hi, I have been checking over your site for awhile now. I am really impressed with all the wonderful information, caring, and support you have here. If I can help in anyway please let me know.
Thank you so much you are much needed!!!
Denise said:
Friday, 14 Nov 2008
Very good site extremely informative
Rachel said:
Wednesday, 22 Oct 2008
Great site full of usefull info Thanks
Carol said:
Monday, 13 Oct 2008
I find it useful as I'm a sufferer
Ruth said:
Tuesday, 7 Oct 2008
My wife Ruth was diagnosed today with Fibromyalgia, having suffered from all the sympooms for several years.
We would appreciate any information on the subject and look forward to your newsletter
Thanks
william and Ruth Scott
Tracey said:
Sunday, 3 Aug 2008
Great site x
John said:
Monday, 21 Jul 2008
Very well done site. John
Kay said:
Saturday, 12 Jul 2008
This site is so informative and helpful.I have done a lot of research on my fibromyalgia but there are things on this site that explain synmtoms I have that I didn't even know were connected to my fibro. Very good site. Thanks for putting all this information here.
Natasha said:
Thursday, 29 May 2008
The information on this sight have been very helpfull thank you.
Philip said:
Monday, 19 May 2008
Looks like a great site for information
